For the past 35 years, Lupus Hawai`i has been serving our islands by
providing awareness, education and support services.
It is our mission to improve the diagnosis and treatment of lupus,
support individuals and families affected by the disease,
increase awareness of lupus among health professionals and the public,
and find the causes and cure.
We welcome you to our website.
We encourage your correspondence and participation.
Welcome back to the 70's! "THE BEAT" is a fun night at the Hawaii Prince hosted by Frank Delima featuring the live music of Wasabi Powerhouse Band H20 and Soulz all to benefit Lupus Hawaii Silent Auction, Lite Dinner, Good Fun, Good Music, Memories and Dancing
Call 538-1522 for more information or info@lupushawaii.org
From the Heart of a Patient...
Aloha,
I would
just like to thank Lupus Hawai`i
for all the help and support that you have given me. It has been God sent
that Lupus Hawai`i is here for all of the patients who have been diagnosed
and will be diagnosed with lupus. It is so good that we have people here in Hawai`i that can help us
understand what has and is happening to us as we struggle to understand the
effects of lupus.
It has been
devastating to lose my job and my house because of this misunderstood and
extremely difficult disease to diagnose. It took almost three years for
the doctors to find out what was happening to me. And there were times that the
doctors made me feel that everything was in my head and not in my body. None of
the doctors empathized with me.I would
sit and just cry because there was no rhyme or reason for the way that I felt.
But when I found Lupus Hawai`i,
there were people who knew what I was going through and could identify with
me.I felt a sense of hope and comfort
because I was not alone.
I have
dealt with many people and different organizations based on the
mainland and sometimes just the time difference alone leaves you
with a feeling of solitude and isolation. By the time they return
your phone call, your crisis has either been resolved or has
escalated to a point that you’re left feeling "what took you so
long?" or “there is no hope”. This situation alone can exacerbate
your lupus condition to a point that you find yourself in the emergency room
with blood draws and IV's and someone telling you “you are having a bad flare”.
With Lupus Hawai`i, you get an
immediate response with a live person who has similar situations and conditions
as you.This helps you realize that they
have the ways and means to get you the help or answers you need. This
alone helps to relieve the doubt and stresses you feel, but most of all the
frustration that this disease has imposed on your life and the lives of your
family members.
Personally,
I have been given pertinent and up to date information available about my
condition. This alone has given me the tools that have helped me understand
what has been happening to me and I can explain things to my family so
they can understand without doubt or fear of the unknown.
My wish is
that this organization can be known through out all the Hawaiian
Islands to reach people who are in limbo about their condition and
feeling that all of this is just in their head. There is hope and there are
people who have lupus and you are not alone!
Thank you for
this opportunity to support this valuable and extremely need organization.
info@lupushawaii.org Office Hours Tuesday 10:00am - 2:00pm Thursday 10:00am - 2:00pm Calls and Emails are answered daily
All funds are kept here in Hawai`i, but ALL calls and emails are answered. We are proud to have calls and emails from around the world.
...RESEARCH NEWS...
You can donate now to the "Bryan Chun Research Fund". All donations designated to the fund will be used strictly for Lupus Research!
We are proud to announce that we are a part of the Lupus Research International's Coalition and we will be contributing to the most cutting edge lupus research! We are now "IN THE LOOP!"
